What a fun day we are having!! Today we spoke with Addison's GI doctor and found out that she still has inflammation and her Liver Enzymes are up. Her medication is starting to affect her liver and pancreas. That being said, Addison started the preparatory things to start receiving infusions of Remicade.
http://www.remicade.com/remicade/pcd/remicade_pcd/remicade_ped.html She was tested for TB today and we will take her back into the doctor on Thursday to have them look at her "bubble". Wednesday Addison will be seen by the Cardiologist that read her Echo. There were a few items that needed to be looked at more closely.
Alex was seen by the doctor today because his ear infection has now become a double ear infection. Dr. Teng said that if the medication he is on doesn't take care of it he will need a new set of tubes in his ears.
I am so grateful to have a healthy Lil Adam :) Today has been an overwhelming day, but I am very grateful for wonderful doctors that take the time to call me, fit my kids in and call in prescriptions so I don't have to wait a full hour! We love all of our friends and family and are grateful for all the love and support you get us. Jen